You should weigh the risks and the benefits before agreeing to have this test. Risks include:
- Unexpected information may be uncovered by your genomic test. We will focus on what is useful to you and provide you the best health care. However, situations such as non-paternity, adoption and unexpected risks or diagnoses could be recognized when your information is viewed along with genetic information from other family members.
- Genetic testing can have emotional effects, especially when a DNA change is found that predicts a serious disease. Genetic counselors are trained to help you understand and process those emotions and your options.
In order to provide these sponsored testing programs at no charge to patients, PreventionGenetics collaborates with biopharma companies like Calcilytix. These biopharma sponsors receive de-identified patient data from these programs as well as contact information for the healthcare providers who use the programs.
De-identified data means that any patient-identifiable information (e.g., name, date of birth, date of test, etc.) has been removed. De-identified information that is shared includes:
de-identified variant information; and
de-identified patient symptom data
PreventionGenetics will never share personal (identifiable) information with the sponsor unless a patient specifically authorizes us to do so.