CONNECT WITH US AT BOOTH #205
Rachel Bellanger, MS, CGC; Danielle Lemke, MS, CGC; Kristen Fishler, MS, CGC; Pankaj Agrawal, MD, MMSc; Katie Swade, MS, CGC
Thursday, October 19 11:00 am – 12:30 pm
Summary: This educational breakout session aims to discuss approaches and perspectives regarding telehealth services for families with children in the Neonatal Intensive Care Unit (NICU). There are a number of genetic counseling companies and hospital systems that offer telehealth services for a range of clinical indications; however, this service delivery model is less commonly utilized in the NICU setting. In this session, parents will provide their perspective on their own experiences with genomics services in the NICU; and clinicians will present their experiences with telehealth as a service delivery model in the NICU, including a discussion of the ethical, legal, and social implications of this model on underserved patient populations.
Shivani Nazareth, MS, CGC; Colleen Caleshu, MS, CGC; Vera Cherepakho, LCGC; Sarah Savage, MS, CGC; Catharine Wang, PhD; Wendy Kohlmann, MS, CGC ; Meredith Gerhart, MS, CGC; Sarah Knerr, PhD; Rebecca Carr, MS, CGC; Jenna Petersen, MS, CGC
Thursday, October 19 11:00 am – 12:30 pm
Summary: Non-oncology settings offer a valuable opportunity to identify hereditary cancer risk before cancer occurs. The vast majority of patients with such risk continue to be unidentified. Digital tools (ex. EHR algorithms, patient-facing web-based tools) are increasingly being studied as scalable ways to help identify these patients. We will explore emerging evidence on a variety of digital tools used in a myriad of non-oncology clinical settings. We will cover data generated in large PCORI or NIH-funded RCTs as well as real-world evidence generated from clinics already using these tools. Presenters will discuss not just the technology solution used, but also the surrounding care delivery model (e.g., assessment, testing, follow up care).
Chandler Means, MS, CGC; Antonina Wojcik, MS, CGC; Deanna Darnes, MS, LCGC; Brad Rolf, MS, CGC; Carla McGruder, MS, CGC
Friday, October 20, 4:45-5:30 pm
Summary: Healthcare providers, patients and family all ask the same question: What is a genetic counselor? While we have had educational content to evaluate how this problem is compacted by non-English speakers (No Soy Doctora/o… Soy Consejera/o Genetica/o, 2021 NSGC AC), we have yet to address that the problem of others understanding what we do starts with our name. This is echoed in lower uptake of GC referrals, especially amongst underrepresented populations. While logistics such as federal bill advocacy and branding are considerations for a measured revision, we should begin to openly consider how we are creating a barrier to access by putting the onus on laypeople to understand who we are instead of meeting them where they are.
TBD
Ashley Daley, speaker
“High rates of completion and short amount of time needed to complete hereditary cancer digital tools suggest they are usable and acceptable to older adults”
Caitlin Harrington, Cecilia Kessler, Andi Hila, Colleen Caleshu
“Both mindfulness meditation and active control meditation decrease burnout in clinical genetic counselors: a randomized controlled trial.”
Colleen Caleshu, MaryAnn Campion, Jehannine Austin, Philippe Goldin, Julia Silver, Aad Tibben
“Comparisons of assessments by a hereditary cancer risk assessment digital tool and genetic counselors confirm accuracy of tool and suggest ways to improve it”
Ashley Daley, Andi Hila, Kiley Johnson, Colleen Caleshu
“High completion rate and positive patient feedback suggest a digital education tool for hereditary cancer risk is both helpful and usable.”
Cecilia Kessler, Caitlin Harrington, Andi Hila, Beth Denne, Colleen Caleshu
“Show Them the Money: Support and uptake of a direct aid program for over 70 genetic counseling graduate school applicants from historically excluded groups”
Carrie Haverty, Colleen Caleshu, Rachel Mills, Aishwarya Arjunan, Michelle Takemoto
Genetic Counselors 4 Change
